252K views · 4K reactions | The Ehlers-Danlos syndromes (EDS) are a...

What we wish you knew about Ehlers Danlos Syndromes & Hypermobility Spectrum Disorder this EDS & HSD Awareness Month! 1.EDS & HSD are a spectrum & can affect people with the same type very differently, with a wild variety of symptoms. Some people can live & work relatively normally, others need lots of surgeries & others can be very disabled & need various mobility aids, from wheelchairs to feeding tubes. 2. They have so many complications or comorbidities that can occur all over the body. I, fo

Ehlers-Danlos Syndromes | Docteur Souare

At EDS ECHO we are supporting doctors, nurses, therapists, midwives, pharmacists, health and social administrators, and community leaders and educators, worldwide, to be better informed and confident in the diagnosis and management of the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and to provide care locally. | The Ehlers-Danlos Society

We are striving toward a time when all those with Ehlers-Danlos syndromes, and hypermobility spectrum disorders, achieve their right for an early diagnosis, good management, respect and recognition for their condition — a time when geography and wealth no longer determine your quality of life. Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins w